tag:blogger.com,1999:blog-5472337465307494867.post2716598498825656430..comments2023-04-28T05:31:17.201+09:00Comments on Dr. Fukaya's blog about TSA (Topical Steroid Addiction) : How long does the rebound period continue? Am I really suffering from TSA now?Anonymoushttp://www.blogger.com/profile/07474068114646311257noreply@blogger.comBlogger35125tag:blogger.com,1999:blog-5472337465307494867.post-17551816571706101542015-06-02T16:41:40.409+09:002015-06-02T16:41:40.409+09:00Hi Dr Fukaya,
May I ask what it means if the skin ...Hi Dr Fukaya,<br />May I ask what it means if the skin is worsens due to seasonal factor (e.g. skin symptoms get worse in winter)? Does it mean that the skin is still undergoing sensitivity after rebound?<br /><br />Thank youAnonymoushttps://www.blogger.com/profile/14520394762177209553noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-9573151718866506982014-11-20T17:04:15.289+09:002014-11-20T17:04:15.289+09:00I can't make a diagnosis without seeing him bu...I can't make a diagnosis without seeing him but TSA is not only disease that causes red, hot flare with oozing in the whole body.Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-16547400851517731342014-11-20T15:01:23.299+09:002014-11-20T15:01:23.299+09:00Thank you but why is his whole body in a red, hot ...Thank you but why is his whole body in a red, hot flare with oozing as that is TSW right? He never had it before until the cream stopped working so it makes him wonder very much.Joey V.https://www.blogger.com/profile/06609019455308772234noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-38255996358312371562014-11-20T14:52:18.334+09:002014-11-20T14:52:18.334+09:00The step infection like that symptom is common. He...The step infection like that symptom is common. He needs antibiotics but doesn’t need cyclosporine at all. I have treated many such cases without steroids.<br />http://mototsugufukaya.blogspot.jp/2013/06/for-parents-of-atopic-children-some-of.html<br />http://mototsugufukaya.blogspot.jp/2013/06/words-i-remember-one-patient.html<br />By the way, it is doubtful he was really addicted. The amount is too small. There is a possibility that his skin lesion was not of TSA but the original skin disease.Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-5380471298956529132014-11-20T12:44:47.068+09:002014-11-20T12:44:47.068+09:00Dr. Fukaya,
I know someone who is trying to keep ...Dr. Fukaya,<br /><br />I know someone who is trying to keep a full time job and support family while withdrawing from Topical Steroids. This person used one tube of betamethasone over a one and half year time frame and it stopped helping. The realization hit that it was indeed, addiction and now must endure withdrawal. It was rough but more tolerable that now,15 months later into this. He has red, hot flare pretty much full body with oozing from places that didn't flare before and 101 temperature, plus elevated white blood count. He was hospitalized two weeks ago with same symptoms and diagnosed with strep infection. He is on antibiotics and just started cyclosporine but concerned with the low grade fever, lot of skin pain, more oozing and white blood count higher than normal. Have you encountered this a common with TSW and such a hard flare from using one tube of steroid over this short time frame? Joey V.https://www.blogger.com/profile/06609019455308772234noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-33179418611079926612014-11-11T14:49:52.678+09:002014-11-11T14:49:52.678+09:00Please take participate in the ITSAN forum and mak...Please take participate in the ITSAN forum and make friends. Talking with patients at the same situation will ease you the most.Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-51119941960047578202014-11-11T14:07:04.128+09:002014-11-11T14:07:04.128+09:00Dr. Fukaya,
What do you recommend patients to do s...Dr. Fukaya,<br />What do you recommend patients to do st home for comfort? Baths, sleep aids, pain medication, food? Is there a rule about oozing or plucking flakes? Is there something we should not do? Also the burning sensation do you agree with Dr. Rapaport that it is nitric oxide? Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-10006200675081995632014-10-28T23:04:10.692+09:002014-10-28T23:04:10.692+09:00Thank you Dr. Fukaya! I will try not to be so pess...Thank you Dr. Fukaya! I will try not to be so pessimistic.<br />Must say that you have a really big heart and you really love people! This is rare now! Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-5850754733179429332014-10-28T08:59:42.693+09:002014-10-28T08:59:42.693+09:00Of course there is enough hope or chance of curing...Of course there is enough hope or chance of curing by itself in your case. What is needed now is mental support not to be too pessimistic and it is provided by me here.Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-77561452951271747592014-10-28T02:31:58.619+09:002014-10-28T02:31:58.619+09:00Thank you for commenting my pictures Dr. Fukaya!
I...Thank you for commenting my pictures Dr. Fukaya!<br />It was a hard decision to take pictures,but its important i think.I decided to take pictures in 2013, but i wish i did it earlier!<br />Yes, think i noticed that i usually had hard flares in november and april-may. <br />Can i ask you one more question please,do you think is there any hope or chance that skin on my face will be cured by itself? Is this rosacea-like dermatitis can be cured? Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-28304887198497207842014-10-27T23:12:20.221+09:002014-10-27T23:12:20.221+09:00You are recovering from TSA. I can judge that by c...You are recovering from TSA. I can judge that by comparing two photos of Oct 2013 and 2014. The present diagnosis of your cheeks is rosacea-like dermatitis.<br />It is worthy that you took pictures of the worst time. Sometimes patients dislike recording them. Is there a tendency of seasonal aggravation in your case? It is important to compare photos of the same month for several years especially in the aggravating season.<br />Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-37016308021992849562014-10-27T22:53:26.914+09:002014-10-27T22:53:26.914+09:00Thank you Doctor! I really appreciate your help an...Thank you Doctor! I really appreciate your help and patience! <br /><br />Ive just apploaded some pictures.<br /><br />http://s8.postimg.org/c5ziksead/Oct2014.jpg<br /><br />http://s29.postimg.org/7ys44r0fb/Ocotber_2013_1.jpg<br /><br />http://s3.postimg.org/gqx4st04z/Oct27.jpg<br /><br />http://s3.postimg.org/4nrt58p2r/May2014.jpg<br /><br />http://s3.postimg.org/rnyghkmwj/2590_1.jpg<br /><br />The worst picture with the neck is november 2013.<br />It would be just great to know your opinion.Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-34687333620396074182014-10-27T21:37:54.055+09:002014-10-27T21:37:54.055+09:00Please refer to my answer to the comment of Renaud...Please refer to my answer to the comment of Renaud Perrier under the following article. <br />http://mototsugufukaya.blogspot.jp/2014/07/topical-steroids-cause-two-kinds-of.html<br />Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-27908423244633020002014-10-27T21:15:10.297+09:002014-10-27T21:15:10.297+09:00Thank you Doctor for reply! I was trying to upload...Thank you Doctor for reply! I was trying to upload some picture here, but it seems that i cant do it in the comments form. I was thinking of how can i upload some photos. Oh my god, it will so just great if you could only give me your opinions about the skin condition. Please, can i send you an email, or to your assistant? If it is possible please send me an empty message on aiya5cat@gmail.com. And if its not possible i will try to think another way of posting photos.Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-34548213637898812322014-10-27T16:54:14.770+09:002014-10-27T16:54:14.770+09:00Can you upload your photos? In am not certain if i...Can you upload your photos? In am not certain if it is possible but I will try to diagnose.Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-73480854438572843752014-10-27T02:45:16.634+09:002014-10-27T02:45:16.634+09:00Thank you very much Dr. Fukaya for your answer!
I ...Thank you very much Dr. Fukaya for your answer!<br />I understand the possible difficulty with the language. But what if i could find a tranlsator? <br />I know that doctors cant cure TSW. But i feel very upset and depressed about my skin on the face. I would be more than happy if doctors could say that its just TSW and it will cure. Im not sure if my skin on the face still going through withdrawal. <br />I had atopic dermatits since 3 y.o. Used TS on elbows and behind the kness since 5 y.o. for maybe 1 year. It came back when i was 15. From 18 to 19 y.o. i used TS on the body except my face.<br />I used TS on my face from december 2006, i was 22 y.o. (advantan), but applied it not very often, since january 2008 i noticed that i must apply TS every 2 day (once in 2 days in the evening). I didnt know about addiction and was still using advantan ointment till september 2010. Dermatologist prescribed me Clovate 0,5 (clobetosol propionate) and i used till march 2011, thats when i first tried to be off TS. In the april of 2011 another doctor told me that im not will be cured and prescribed me dermovate. I used it eveyday till may 21st 2011, then i decided to quit TS. But i didnt know about cold turkey, and was using on body except my face.I started cold turkey in june 2012. I had a mild red skin syndrome symptoms on my hans,legs, and belly area including chest, without red sleeves, but terrible withdrawal syptoms on the neck.<br />Now i have angry and red skin on my face from one cheekbone to another,including cheeks and sometimes forehead and jaw line. Sometimes with oozing. It looks very strange, the skin is very thin and sore, sensitive and looks terrible still. Oh and my neck is flaring too, but not so bad as it was. It would be priceless to me if doctors could just tell me that im still in withdrawal and it will go, because im not sure whats happening to my face, i dont even recognize myself and i haven any breaks on my face skin since i started withdrawal. Maybe my vessels are destroyed forever or maybe i got some kind of atrophy,i dont know. But im tired and sad of this unknowing situation.Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-12969918894318836732014-10-25T17:18:34.728+09:002014-10-25T17:18:34.728+09:00I think it is possible for you to see Dr. Sato. I ...I think it is possible for you to see Dr. Sato. I know direct communication can ease patients very much. But I am afraid if it is really worth spending money and time for overseas patients by travelling to Japan. It is because Dr. Sato (and me also) is not so familiar with seeing patients in English. <br />Doctors don’t cure but time cures the illness in TSA/TSW. If you have any question, I will answer as much as possible here in the comment column. <br />The URL of Dr. Sato’s hospital is as the following and you can find e-mail address in it.<br />http://www.hannan-chuo-hsp.or.jp/other/toiawase.htmlAnonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-12549422884110248942014-10-25T13:44:14.935+09:002014-10-25T13:44:14.935+09:00Hello Dr. Fukaya.
Thank you for very good article....Hello Dr. Fukaya.<br />Thank you for very good article.<br />Its very sad that you dont work with TSW patients, if i do right understood from your blog. The reason im writing this,i wanted to visit dermatologist who is understands whats happening and very familiar with TSW, and could examine skin condition for skin atrophy. I know that there is also Dr. Kenji Sato in Japan. Do you think its possible to visit Dr. Sato or maybe to visit you from another country? I feel that i really need to see a doctor who really understands whats going on,Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-30928358385282986092014-03-30T16:00:39.419+09:002014-03-30T16:00:39.419+09:00Oh, thanks for the video!
Would that patient have...Oh, thanks for the video!<br /><br />Would that patient have eventually healed regardless if he had not move houses? What was aggravating his skin that was in his old house?Anonymoushttps://www.blogger.com/profile/14520394762177209553noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-55395461972148772492014-03-30T14:52:40.827+09:002014-03-30T14:52:40.827+09:00It is very normal. It is often the case with patie...It is very normal. It is often the case with patients.<br />Please refer to the latter half of the movie I uploaded. Don’t be too much depressed. Be smart.<br />https://www.youtube.com/watch?v=mJ0IKTSse2E<br />Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-59588806796765579492014-03-30T14:43:20.363+09:002014-03-30T14:43:20.363+09:00Hi Dr Fukaya,
If someone were to recover from ini...Hi Dr Fukaya,<br /><br />If someone were to recover from initial TSW flare (about 7 months after withdrawal) but still a little bit red and itchy and then 4-5 months later flare again unexpectedly, but not as bad as the initial flare, would you say this is normal behavior of TSW? <br /><br />Or would you say that it has been accidental reapplication of steroids without the person knowing it (accidently touching steroid from other people eg, shaking hands)?Anonymoushttps://www.blogger.com/profile/14520394762177209553noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-33229203232853748542014-03-30T10:40:55.416+09:002014-03-30T10:40:55.416+09:00There are two possibilities. 1Pustules formation c...There are two possibilities. 1Pustules formation can occur in the course of TSW. 2Superficial infection adding to (aside from) TSW. I can’t discriminate from your writing only. The latter occurs very rapidly and often asymmetric. I recommend you try disinfectant therapy (Please find the article from the right side labels).Anonymoushttps://www.blogger.com/profile/07474068114646311257noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-41584569448518045472014-03-30T05:54:25.175+09:002014-03-30T05:54:25.175+09:00Hello Doctor, I am 2 months intro withdrawal. Like...Hello Doctor, I am 2 months intro withdrawal. Like other TSW patients I have oozing skin, itchiness and muscle/joints pain. But the thing that freaked me out right now is the formation of pus (the cloudy yellowish-white coloured fluid) on my face mostly and on my hands and arms. Is it some kind of infection? Or is it part of TSW process? At times I wonder whether I am having red skin syndrome myself. I really need your help in this doctor.Deiya Tanakahttps://www.blogger.com/profile/00045410880721679398noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-69764982235417667822014-01-29T00:53:05.185+09:002014-01-29T00:53:05.185+09:00Hi Doc,
Just to give you more information, I am e...Hi Doc,<br /><br />Just to give you more information, I am experiencing oozing, pain, itchiness, and the constant terrible cold. So much thick.dead skin keeps growing around my mouth and neck area and i have trouble eating and turning my head. Together with the bleeding, i feel like giving up and returning to steroids and taper it off together with the help of traditional chinese medicine (tcm). As many tcm told me to go back to steroids first.<br /><br />I have idea what should i do. I would like to have your advise whether to taper off with steroids and tcm or continue go through tsw with hellAnonymoushttps://www.blogger.com/profile/08178379773400103802noreply@blogger.comtag:blogger.com,1999:blog-5472337465307494867.post-10303777235408848082014-01-29T00:39:58.954+09:002014-01-29T00:39:58.954+09:00Hi, i hav been using steriod oral n application fo...Hi, i hav been using steriod oral n application for 10 yrs. i am goin thru TSW n nw is the 4th month. Everyday is hell n I lie in bed everyday. I am taking traditional chinese herbs n it only slightly improve the appearance of my skin . I cant stand the cold. Is like winter everyday. The pain in my mouth n neck is so painful that i feel like dying. My skin is very severe that few tcm physician suggest that i take steriod injection n tcm herbs together. Should i take steriod temporary to improve my condition then i use tcm ? Or i just go thru TSW without steriod ? I am v confused nw. If i take steriod to relieve pain temporary n then take tcm, wil i suffer more later ? I just want to find a cure to this nightmare. At the same time, i want to suffer the least amount of pain. I can sent u pictures if u wan to see. <br />Anonymoushttps://www.blogger.com/profile/08178379773400103802noreply@blogger.com